Well I'll give a bit of an update first, so Jeffrey fell ill 2 days before his expected cardiac cath so he was not able to have it done. His nose was apparently coming out of his eyeballs (his complaint, not a diagnosis!). It has been re-scheduled for March 18th. He has a VP clinic appointment for his throat/speech March 13th. Neuromuscular appt and EMG and E.N.T April 1st. He also has a sleep clinic on April 9th.
With Jeffrey we're always trying to find balance. I find as he grows, it gets harder and harder. Do I let him play hard with all the other children? Even though it sends him into fits of coughing and makes him exhausted or do I force him to rest and slow down?
He's only 32 pounds and barely maintaining that plus he's a picky eater. Do I force him to eat the food he cries is disgusting? Do I only cook food he likes (pizza pockets, spaghetti, mac&cheese, toast)?
What about his sleeping arrangement. He refuses to sleep in his own bed because he's scared of the 'bad ghost' in our house (according to him). I let him sleep with us because I have always enjoyed bed-sharing but now it's to the point he wants one of us to cuddle him to sleep. I have no problem with that personally but would it be better for him in the long run to sleep on his own?
